Patient Activation through Community Conversations TM
You can host a PACC for your clients, friends, family, faith community, a civic organization or anywhere people gather. Call for more information (516)579-4711
Join a PACC and Become a Well-Prepared Patient, Advocate or Caregiver
A PACC is Not a Support Group-Although You May Very Well Find Support
Comments
“I found helpful were the various experiences the attendee had re family members treatment in medical facilities.”
“Great programming as always. The consistency of programming is very supportive to me as a private patient advocate”
“Great discussion!”
“I WILL be back!”
“Lovin' it so far. Thanks!”
Join a PACC
When: The first Wednesday of the Month
Time: 7:00 PM Eastern Time - Stop in early for check in and chatter
Are you helping to make life-changing healthcare decisions for yourself, your family or others and aren’t sure of your options? Don’t know who to turn to?
Are you a patient? Are you an advocate? Have you cared for, or are caring for a family member or friend? No matter who you are, you probably have experiences that others can learn from, and you can learn from others.
A PACC is not about your health. It is about your health care, the experience leading up to good health.
Actual conversation with members of an HIV/AIDS support group
Facilitator: “Someone here chose this topic – ‘Do you have a healthcare proxy and how did you choose someone?' Who would like to discuss this?’”
PACC Participant: “I don’t have a healthcare proxy and don’t know how to choose someone if I don’t want them to know I am HIV positive. I would like to know what others have done.”
Do YOU have unanswered questions about your health care? Are you an advocate or caregiver for someone and wonder how you could help? Ever wondered what you don’t know? PACC groups are the place to find out. They’re where people like you share what has worked, and what hasn’t.
Host a PACC for your friends, your family, your faith community, your business (at lunch or after work) for your support groups or any place people gather. College students and high school classes can host a PACC too! Call (516) 579-4711 to learn more or e-mail [email protected]
Minimum participants should be 10 people. Maximum 20
Pulse Patient Activation through Community Conversation (PACC) series is approved for 1.0 General CE by the Patient Advocate Certification Board to satisfy the requirements for Board Certified Patient Advocates (BCPA). The program is free but Pulse charges a processing fee of $15 and an evaluation must be complete following the program to process CEs for BCPA’s.
Date
Jan. 4, 2023
Feb. 1, 2023
March 1, 2023
April 5, 2023
May 3, 2023
June 7, 2023
Date
July 5, 2023
Aug. 2, 2023
Sept 6, 2023
Oct. 4, 2923
Nov. 1, 2023
Dec. 6, 2023
Choose a Topic or Bring Your Own
Diagnosis
1_____Have you ever sought out a doctor for a second opinion? How did you find that doctor?
2_____Do you write down your symptoms or try to remember them? Have you had difficult experiences diagnosing symptoms? Why?
3_____ Have you ever mistaken illness for medication side effects? Have you ever had experiences with side effects? If so, how was that discovered?
The Doctor’s Office
4_____What do you bring with you to the doctor’s office?
5_____What do you think is a reasonable wait at the doctor’s office? Have you ever walked out because you waited too long? Did you make another appointment?
6_____What do you do if you get home and realize you have a question you forgot to ask?
7_____Have you ever continued seeing a doctor you didn’t like? Why?
8_____Do you have trouble getting an appointment? What is a reasonable wait to get an appointment?
Legal
9____Do you have a person as a healthcare proxy? Why did you choose that person?
10_____Have you shared your wishes with the person listed as your healthcare proxy? How did they react?
11_____If you don’t have a healthcare proxy, why not?
12_____I know my rights as a patient but I think we should add………
13_____Are you concerned about your privacy on issues such as medical conditions and family involvement? Why?
Medication
14_____ Do you keep a list of medications with you at all times? Where do you keep it?
15_____ Do you know the names of all your medications? If not why?
16_____ Do you read all the warnings about your medications, including over the counter meds (OTC)? Have you ever been surprised?
17_____ Do you speak to your pharmacist about your medications? What do you speak about?
Navigating Healthcare
18_____How do you choose a hospital or urgent care practice?
19_____Do you think the urgent care offices are useful? What have you used them for?
20_____Have you ever filed a complaint with a hospital? How did you start and where did you send it?
21_____Do you read your bill? Do you understand it? Have you ever disagreed with your bill? If so what did you do?
22_____Do you ask prices before getting a procedure or seeing the doctor? If so, what has that experience been like?
23_____Do you use a doctor, nurse practitioner, physician’s assistant or someone else?
24_____Have you ever looked for hospice, rehab, nursing home or other services? How did you get started?
Caregivers
25_____ Are you or have you ever been a caregiver for someone? Was it your choice or did it just happen? Do you have any learned experiences?
26_____ Did you get support for yourself as a caregiver? How did you take care of yourself?
27_____ Did you ever get frustrated or angry as a caregiver? What did you do to help yourself?
28_____ Did you ever have to make changes in your holiday schedule as a caregiver? What was that like?
29_____ Do you go to the doctor with your elderly parents or young children? Do you feel like you are welcome? What is your role when you go and did you discuss your role before going?
30_____ Have others cared for you? Does that frustrate you or make you happy?
31_____ How have you shown appreciation for those who care for you, both professionals and family?
Procedures
32_____Do you keep records of your procedures such as mammography, colonoscopy etc.? Where do you keep your records? (computer? notebook? wallet? elsewhere?)
33_____Do you always call for the test results? Does the doctor’s office encourage you to call?
34_____Have you ever agreed to a test or procedure that you felt was not needed? Were you glad you did?
35_____Did you ever say you would get a test and then not go? Why? (Cost? Fear?)
36_____Do you read the consent form carefully before signing?
Hospital Stay
37_____ Do you find out about visiting hours before going to see someone in the hospital?
38_____ Were you ever told you had to leave a family member or friend?
39_____ Do you help yourself or your hospitalized family member with supplies such as blankets or water?
40_____ Have you ever had a problem with food services? How did you handle it?
41_____ Have you ever complained about the food? What was the problem and how was it fixed?
42_____ Have you ever asked a doctor or nurse to wash their hands? How did that go?
43____ Have you ever raised a concern about the care someone received at the hospital? Who did you speak with? How did you know who to speak with?
44____ How long do you visit someone?
45____ What do you do when you visit someone?
46____ Have you ever been in the hospital and not want visitor?
Misc.
47_____ Have you ever been made to feel unwelcome by your doctor or staff? What did you do?
48_____ Did you ever think your doctor did not have your best interest as his priority? What did you do?
49_____ Have you ever gone up the chain of command in a hospital to get service? Whom did you see?
50_____ I would like to speak about something not listed
Registration to this and all Pulse CPSEA Zoom events is required. Speaking about medical care can become a very sensitive topic so we ask all participants to review the Disclaimer Notice before registering.
For more information or to host a PACC around a specific group of people (age, medical condition or even family or faith community, etc.) Call 516.579.4711. We encourage a minimum of ten people and maximum of twenty.
